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During the Barça-Granada match, the FC Barcelona Foundation started an awareness campaign for children with Fragile X Syndrome
Children with the genetic disorder and doctors attended the match at the invitation of the Foundation
A group of children from the Asociación Catalana del Síndrome X Frágil,in the Barça Museum. PHOTO: ÀLEX CAPARRÓS / FCB
The FC Barcelona Foundation, committed to helping the most vulnerable, has shown its support to people that suffer from Fragile X Syndrome and their families. For this reason, coinciding with the Barça-Granada match this past Tuesday, the Club, in collaboration with the Catalan Association, started an awareness campaign for Fragile X Syndrome.
Initiatives in the Camp Nou
Among the various awareness projects, the Camp Nou speaker, Manel Vich, made an announcement over the stadiums PA system about genetic disorder moments before the match. The Foundation also invited 10 children that have Fragile X Syndrome and their families to the match. The children visited the Club’s Museum and, before the match, took photos with the first team.
A dozen professionals from the Fragile X Syndrome Catalan Association attended the match, amongst them, doctors and psychologists. In the stadium’s presidential box, two renowned doctors were present, Dr. Paul J Hagerman and Dr. Randi J Hagerman, both of whom are in Barcelona attending a medical conference on Fragile X Syndrome.
What is Fragile X Syndrome?
The syndrome is a genetic disorder of familial transmission that’s linked to the X chromosome. The syndrome causes developmental issues in children. Fragile X Syndrome affects 1 out of every 4,000 male children and 1 out of every 6,000 female children.
Messi also raises awareness for children with disorder
Leo Messi has stood in solidarity with children that have Fragile X Syndrome in the past. Perhaps the most well-known event was on May 2nd, 2009, the same day that Barça beat Madrid 2-6. In that game, the Argentine superstar, whilst celebrating both of his goals, showed the world the T-shirt that he was wearing under his jersey; it read ‘Fragile X Syndrome.’