NewsDetails - Foundation
The Foundation gives visibility to rare diseases
Wednesday February 29th marks the World Rare Disease Day and the FC Barcelona Foundation wishes to emphasise the cause. Last Sunday, the Foundation invited to the Barça Regal v Mad-Croc Fuenlabrada match, twelve children suffering from some of these conditions, accompanied by their families. At the end of the game the children had their photos taken with members of the Regal Barça squad, as a sign of awareness for the cause. This action was possible thanks to Fundació Doctor Robert.
Visibility on social networks as well
The Foundation, through its Facebook page, and the Club's social networks, also wanted to give visibility to an awareness video produced by FEDER, the Spanish Federation for Rare Diseases. As reported by this organization, "the aim of this World Rare Disease Day is to position these diseases as a health and social priority. Lack of information and social ignorance of these conditions leads to situations like the average diagnosis time 5 years, or that 76% of people who suffer the diseases feel neglected and discriminated against".